17 days until my CARDIAC CATH HEART PROCEDURE widening the stents i already have will help the blood flow the correct way instead back one side is flowing back wards! that is what making my heart extra hard work out i can't wait to see the results out come God gives me, i have so many new plans with Robert Allen Barkerafter our wedding. They say if no complicatations it will be a one nightstay " the heart grows when you grow so dr k dr willson need to go to it and widening the stents that they have placed in there 2009 17 days im counting is because i can prepare my self everyday for it health wise and faith wise.!! These doctors have this work day in and day out they are wonderful i have 60 cardiolgy doctors working with dr k and he has known me years in my early adult hood. just pray for the doctors hands & minds im only sharing this because God led me too i know u pray for me often i pray for my FB Friends & Family but now i ask if u just pray for the doctor teams and dr k and dr willson !!! i just tease and say well i hope they dont have tuns of coffee that morning i need there steady hands lol "
hi family & friends welcome to my Comfort Quilts blog i have found Quilts on my heart health journey Quilting for me has helped me in so many ways . Its always a wonderful learning tool and my Quilts are known for all over the world
my world
{Pattington Bear} table runner"!
12 by 12 2 in half inch squares Christmas tree with buttons!
4of July table runner
A new start with a heart like mine!
Act it out
Adult congestive heart failure
All my stars table runner
All my stars table runner in the making
and chicks oh my baby quilt!"
baby zoo annimals such a soft baby quilt with tie not's i added
back to the Croods
Basket Ball Fun
Bits & Pieces Large Throw!
box Step Pattern Large Throw 2013-2014
Breakfast sausage hash browns and scrambled eggs and melted cheese on top
Bridal Shower pics
Bridal Shower Time
Bronco fervor
Cardiac cath
Carrie Comfort Quits
Carries Comfort Quiilts
Carries Comfort Quilts
Carries Comfort Quits
CarriesComfort Quilts
Cats and zebra Quilt twin size
Celebration
Christmas 2015
Christmas Charlie Brown!
close up baby kittns baby Quilt
Colorado Rockies night
Crib size Flying gueese pattern snoopy and wood stalk forever for ever
Croods video clip must watch listen care fully to there message!"
Denver mart Quilt Show
Don't be over cooked pasta
Down town adventures
dress Rehursal Night
Facts about Noah film
Fear Is Leaving!
Feeling Broken Nov 2013 back in the hospital with Kidney failure"
Fiancé side of our love story
Garden town home ideas for our place:)
Gods waiting room
Got to meet everyone on Robs side of the family 1/7/14
gotta love Tinkerbell!"
Happy song
Harvest Party 2013
Heart Like mine part 2
Hello kitty quilt
Home sweet Home
I googled what the doctors next plan for me!! feeling not affraid."
I said yes to my dress
I want to grow my poem
I'll take it any day
If u had the time or money or both
Im A survivor!
John deer quilt in the making
Jumping Frogs Rail Fence Quilt!
large Throw Slide show pattern fabrics show case is Ballerina dancers!
Lions and tigers & Monkeys omy!
Lions Tigers super Heroes
Mandisa - Over Comer
Me and My Sister Design Pattern easy 6
Meen while snowy Colorado
Moms first charity Quilt 2014
My business items I ordered. Can't wait to have them
My etsy store
My Faith Wall
My first appliqué thanks giving table runner
my First fringe quilt appliqua' hearts"!
My girls FCC
My Graduation T Shirt Quilt!
My head is killing me
My heart procedure
My New Start!
My testimony 2009!
nap time Quilt boy or a girl thomas the Train!
Nap time Quilt Tweety ! for a boy or a girl !
nap Time Quilt UnderCunstruction Trucks and cars!
Nap time sports balls quilt for a boy or a girl!
Neoplotian Baby Quilt
New year 2015
New Years 1/1/14
Noahs baby annimals
On my way
our engagement photos! 2013 last Feb 14!
Our first wedding anniversary
Our friends baby shower time.
Our wedding Day
Our wedding video
Peanuts on Ice Skates Small Throw! for a boy or a girl!
Piano covers are complete
Poem "You Hold My Heart"
Poem "Missing Nicole"
Poem "let Him hold you"
Poem "When I need you the most"
Poem Girl U know he will
Poem God Holds the tears when we can not cry"
Quilters Travel
Reba McEntire words
Relient k I celebrate the Day my fave Christmas song!" it will melt your heart 2!
Rob & I our Fall Pics Oct 20 /2013
Rocky Mountain Quilt Museum
Sandras Holiday tablescape
Skit Guys Baggage Video!
small throw Happy Squares !
So close but so Far
so let it grow! Jan 12/14
soft flannel baby quilt of tiny roses!"
soft sheeps turtles
Sometimes we have the Crood's issue
Stay Connected !
Striped Quilt Large Through girlsscout cookies and jelly beans candy chocolate kind of a quilt !!
Sunflower table runner
Sweet Nudge
The beginning of piano covers
The bride side of the story "
The heart disease I was born with
The message
The shock of my life
there are speed bumps and pot holes"
this pattern small throw and i made it along the way with out a pattern!
Tinker Bell Pannell
Tinker Bell Quilt
U never know
Valentine project 2/14/14
Valentine weekend
Video count on me
Video of Beth Moore "fight worth fighting for"
Video piano guys
Video tenth ave north
Video were feet may fall
Vidio Casting Crowns Some Where in the Middle."
Weather the storm
Wedding memories
Wedding praise report
What are you thankful for
Winny the pooh classics & Friends Qween size my first Qween I ever made maybe not the last!!
Women if Faith Time
5/09/2014
5/07/2014
IF U HAD THE TIME & MONEY LITTLE OR LOTS DOESNT MATTER WHAT EXTRA HOBY WOULD U PICK UP TO TAKE OR LEARN
IF U HAD THE TIME & MONEY LITTLE OR LOTS DOESNT
MATTER WHAT EXTRA HOBY WOULD U PICK UP TO TAKE OR
LEARN PLEASE REPLY ON COMENT BELOW
MATTER WHAT EXTRA HOBY WOULD U PICK UP TO TAKE OR
LEARN PLEASE REPLY ON COMENT BELOW
4/28/2014
Bridal Shower pics!!!! 4/26 /2014
http://1drv.ms/1mOjJxq
Thank u so much for
being a part of my special day
every one there
is so importabnt and plays
a big part of my life!
click on this link u will see many more pics from this memory I will always cary with me!"
htts://1drv.ms/1mOjJxq Carrie &
Debbie
Carrie & Holly :)
Carrie & Holly & :)
just me '
Carrie & Amanda! we go way back in highshool together! met it classes and later she found me on fb ! so happy she did <3 br="" nbsp="" p="">
http://1drv.ms/1mOjJxq
Thank u so much for
being a part of my special day
every one there
is so importabnt and plays
a big part of my life!
click on this link u will see many more pics from this memory I will always cary with me!"
htts://1drv.ms/1mOjJxq Carrie &
Debbie
Carrie & Holly :)
Carrie & Holly & :)
just me '
Carrie & Amanda! we go way back in highshool together! met it classes and later she found me on fb ! so happy she did <3 br="" nbsp="" p="">
http://1drv.ms/1mOjJxq
4/08/2014
Can't Help Falling in Love (Elvis) - ThePianoGuys (+playlist)
http://quiltingalwaysforhim4.blogspot.com/
3/30/2014
By Youre side" Tenth ave North
http://quiltingalwaysforhim4.blogspot.com/
http://www.youtube.com/watch?v=iFvQQt6Nbh8
http://www.youtube.com/watch?v=iFvQQt6Nbh8
3/27/2014
The HEART DEISEASE I WAS BORN WITH " Tetralogy of Fallot
http://quiltingalwaysforhim4.blogspot.com/
Any one who have a heart like mine please please contact me!!"
Tetralogy of Fallot
Any one who have a heart like mine please please contact me!!"
Tetralogy of Fallot
What is pulmonary artery stenosis?
Pulmonary artery stenosis is a narrowing (stenosis) that occurs in the pulmonary artery, a large artery that sends oxygen-poor blood into the lungs to be enriched with oxygen. The narrowing may occur in the main pulmonary artery and/or in the left or right pulmonary artery branches. This narrowing makes it difficult for blood to reach the lungs to pick up oxygen. Without enough oxygen, the heart and body cannot function as they should. In an effort to overcome the narrowing, the pressure in the right ventricle (the chamber that pumps blood into the pulmonary arteries) rises to levels that can be damaging to the heart muscle.
What are the symptoms of pulmonary artery stenosis?
If the narrowing in the artery is less than 50 percent, your child may not experience any symptoms. However, if the narrowing of the artery is more than 50 percent, your child may experience any of the following symptoms:
- shortness of breath
- fatigue
- heavy or rapid breathing
- rapid heart rate
- swelling in the feet, ankles, face, eyelids, and/or abdomen
What causes pulmonary artery stenosis?
Pulmonary artery stenosis is a congenital heart defect, meaning it is a defect that is inborn or exists at birth. Stated another way, the defect is an abnormality, not a disease. Pulmonary artery stenosis is often present in combination with other congenital heart defects, such as:
- Tetralogy of Fallot – a four-pronged defect consisting of: 1) a ventricular septal defect, 2) a narrowing at or just beneath the pulmonary valve, 3) a right ventricle that is more muscular than normal, 4) an aorta that lies directly over the ventricular septal defect
- Pulmonary atresia – absence of a pulmonary valve, preventing blood from flowing from the right ventricle into the pulmonary artery and onward to the lungs
- Truncus arteriosus – the formation of only one combined artery instead of the normal two outlets from the heart, the aorta and pulmonary artery
- Pulmonary valve stenosis – problems with the pulmonary valve (for example, development of less than three leaflets, leaflets that may be partially fused together, thick leaflets that do not open all the way) that make it more difficult for the valve leaflets to open and permit blood to flow from the right ventricle to the lungs
- Patent ductus arteriosus – an open passageway between the pulmonary artery and the aorta. Normally, this passageway closes on its own within a few hours of birth, but when it does not, surgery or an outpatient catheter-based procedure is needed to close the opening
Other causes of pulmonary artery stenosis can include: other syndromes that affect the heart (such as rubella syndrome [a group of heart and other health problems in an infant caused by rubella infection in the mother during pregnancy] and Williams syndrome [a group of abnormalities affecting the heart and other organs]) and surgical procedures used to correct other heart defects (for example, pulmonary artery banding - a purposeful narrowing of the artery to reduce blood flow to the lungs).
How is pulmonary artery stenosis diagnosed?
During a routine examination, your child’s doctor may hear abnormal heart sounds (a murmur) when listening to the heart. If abnormal sounds are identified, your doctor will order other tests that can include:
- An electrocardiogram (ECG or EKG) – a test that records the electrical changes that occur during a heartbeat; reveals abnormal heart rhythms (arrhythmias) and detects heart muscle stress
- Chest X-ray – a test to show the size and shape of the heart and lungs and pulmonary arteries
- An echocardiogram – a test that uses sound waves to create a moving picture of the heart’s internal structures
- Doppler ultrasound – a test that uses sound waves to measure blood flow; usually combined with echocardiogram to evaluate both the internal structure of the heart and blood flow across the heart’s valves and vessels
- Cardiac magnetic resonance imaging (MRI) – a test that uses three-dimensional imaging to reveal how blood flows through the heart and vessels and how the heart is working
- CT scan – an x-ray procedure that combines many x-ray images with the aid of a computer to generate cross-sectional views of the heart. Cardiac CT uses the advanced CT technology with intravenous (IV) contrast (dye) to visualize cardiac anatomy, coronary circulation, and great vessels
- Cardiac catheterization – a procedure that involves inserting a thin tube (a catheter) into a vein or artery and passing it into the heart to sample the level of oxygen, measure pressure changes, and make x-ray movies of the heart and its internal structures
- Pulmonary angiography – a dye-enhanced x-ray of the pulmonary arteries and veins of the heart
- Perfusion scan – a test in which the patient is injected with a small amount of a radioactive material. A special machine shows how well blood is flowing through each of the two lungs.
- Additional tests may be ordered as necessary
How is pulmonary artery stenosis treated?
If your child is diagnosed with pulmonary artery stenosis, your pediatrician or primary care doctor will recommend that you meet with a congenital heart specialist (a doctor who has the training and equipment to determine your child’s heart problem and order the necessary special tests, medical care, heart surgery, and follow-up checkups). The best treatment approach will depend on your child’s symptoms as well as other characteristics of the stenosis. Mild to moderate narrowing in one or more pulmonary artery branches usually does not require treatment, but severe cases do require some form of therapy. Available treatments include:
Balloon dilation
This treatment method consists of moving a balloon dilation catheter into the narrowed area of the artery. The balloon is carefully inflated – first under low pressure and then under higher pressure – until the narrowed area is widened. The balloon is then deflated and removed. Although the narrowing is improved in a majority of patients following balloon dilation, overtime the artery can again become narrow in as many as 15% to 20% of cases, requiring further ballooning. Different types of balloons are currently being developed that will likely lead to better and longer-lasting results.
Balloon dilation and stent placement
In an effort to improve on the results of balloon dilation, a search for a more effective treatment was begun and led to the development of the stainless steel balloon-expandable stent. Stent placement is accomplished by positioning the stent across the narrowed segment of the artery. The stent is mounted on a balloon angioplasty catheter and covered with a sheath as it is moved into position. The sheath then is withdrawn off the stent-balloon angioplasty assembly and the balloon is inflated to its recommended pressure, expanding the stent and anchoring it in place.
The Cutting Balloon™
This procedure is similar to standard balloon dilation but the balloon has been specially designed with small blades running up and down its length. When the balloon is inflated, the blades are activated and they cut through the narrowed area, making the vessel easier to dilate and resulting in a larger opening. Cutting balloons are available in different sizes.
Surgery
Various methods of surgical repair of pulmonary artery stenosis are used, the choice of which depends on the characteristics of the stenosis and the surrounding vessels and other structures.
How to find a doctor if you have adult congenital heart disease
Doctors vary in quality due to differences in training and experience; hospitals differ in the number of services available. The more complex your medical problem, the greater these differences in quality become and the more they matter.
Clearly, the doctor and hospital that you choose for complex, specialized medical care will have a direct impact on how well you do. To help you make this choice, read more about our Sydell and Arnold Miller Family Heart & Vascular Institute outcomes. See: About Us to learn more about the Miller Family Heart & Vascular Institute at Cleveland Clinic.
The Center for Adult Congenital Heart Disease in the Sydell and Arnold Miller Family Heart & Vascular Institute is a specialized center involving a multi-disciplinary group of specialists, including cardiologists, cardiac surgeons and nurses from Cardiovascular Medicine, Pediatric Cardiology, Pediatric and Congenital Heart Surgery, Cardiothoracic Surgery, Diagnostic Radiology, Pulmonary, Allergy and Critical Care Medicine, and Transplantation Center, who provide a comprehensive approach to diagnosing and treating adult congenital heart disease.
The Message " 3/27/14
http://quiltingalwaysforhim4.blogspot.com/
3/27/14
3/27/14
Well my nurse called me this morning yesterday she told me it was stable but on the blood lab my kidneys are swollen I need to go in next wed .
My nurse was waiting on second app union of my test reading and lab work they are need to do another procedure again at children's hospital it would be soon I'm still hoping that It will be after wedding cardiology team agrees that stents put in cardiac Cath lab @ children's I'm shocked with my morning message I do have the best team I doctors looking out for me !!!! There is 6o or more of them that is working wth Doctor Kay ! I'm still shocked
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